Monday, July 22, 2013

I'm A Neuropathic Nightmare!!

I saw the Neurologist and found out after many tests, scans, and pokey needle things that I definitely have Peripheral Neuropathy which we already knew but now I have an updated diagnosis of it for my records. What I wasn't expecting was that when I brought the papers home and looked at them I saw that the doctor had written down, "Small Fiber Neuropathy", "Idiopathic Neuropathy" (which just means no clue what caused it), and "Autonomic Neuropathy".

The thing that bothers me is the Autonomic Neuropathy because it's one that affects your organs and explains why I've been getting dizzy a lot. It seems it is affecting my heart although only very mildly at this point. We aren't sure yet what other organs are being compromised yet and I can't say I'm in a hurry to find out.

I also found out that I have to have an MRI and I'm being referred to a pain clinic because she honestly thinks that at this point I'm going to need pain meds. Not what I wanted to hear but also what I already knew too. I've tried all the medications to try to help with this neuropathy and I've either had bad reactions or there is my Gabapentin which keeps me sane and not wanting to gnaw my limbs off but doesn't actually help pain. I absolutely hate pain medications and will have to mentally become okay with taking them so we will see.

Big B and Sis are doing alright and plugging along in this shithole we call life. All I can hope is that they are smarter than I was at that age and make the most of their lives. I want the best of everything for them and it's hard once your children become adults because you can't give them that or do it for them. As adults they have to go get it for themselves. Can't help wanting to care for my "babies" no matter how big they get though. Lol.

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