Do You Find This Creepy?
*this is not a paid post or advertising post but a real question from me personally.*
I've been thinking about this lately and thought I would see what other people's thoughts were on this. I have already started making arrangements for when I die. Hopefully that won't come for a long time but I hit a point last year where I decided I didn't want my family to have to deal with figuring everything out while they are grieving.
So last week I let the kids pick out the Memorial Urns that some of my ashes will be put in for each of them. I even saved up money for several months to buy fairly nice ones so around here talking about it has been like talking about the weather...
Me: "What do you think of this one Bret?"
Bret: "Too girlie. What about that one?"
Me: "Oh I like that. Do you guys want that one?"
Seriously, it's how we discuss it. Here is the one we chose; Mother's Touch Urn
Next I will be buying the cremation jewelry for each of them and a keepsake urn for Vin as well. Do you find this creepy and weird or smart? I feel deep down that this cancer is going to end up in my bones and I want to be ready for it. I want all this out of the way so we can enjoy the time we will have left at that point.
Some people think it is morbid and that it's not good for the kids. I think it's good for them to know it's a reality, it will happen someday, and then toss it to the side. We don't dwell on it (because again, I could live another 20 years if this cancer behaves) but accept it and to be honest, it has been very freeing for all of us. The kids even know what I want done with my remains, where my will is, and who is getting what material-wise.
How do you feel about this? Is this what you would do with your family or do you think there is a better way? I'm honestly asking and welcome all opinions even if you think I'm a sick freak.
Thanks.
Monday, April 07, 2008
Friday, April 04, 2008
Update on Breast Lump and Node in Neck
I felt so kinky on Monday, I got felt up by a chic while two guys watched. GO ME!!!!
Okay so what really happened is the breast surgeon examined me at my appointment and I could have given a shit less that two med students watched. LMFAO.
The word on the lump in my right breast is that it does NOT look to be a form of breast cancer and is most likely metastatic medullary cancer. We are going to do another scan in three months and go from there on it. Of course, if it IS metastatic MTC then I am the only person this surgeon has known that has had it spread there. I'm going to have to check with my MTC group and see if anyone else has had it though because the folks on the group would know.
As for the the lymph node in my neck, I will be having surgery to have it removed on April 15th. It will be easy compared to my last cancer surgery on my neck so I'm happy.
I'm not going to St Louis at this point because the doctor felt (she's a thyroid & breast surgeon) we would cause more damage than good if we went after the other 12 (?) cancerous lymph nodes in my neck. I already have a ton of scar tissue AND we already know the medullary cancer has spread to my armpits and lungs sooooooooooo no hurry taking out a bunch of little lumps. Same thing goes for the spots in my lungs. It just all stays for now and once they start growing then we'll turn to surgery and maintenance meds.
So all in all a good day. I get to keep what little bitty boobies I got and I finally get this damn thing out of my neck that has been pressing on my carotid artery and causing the mini strokes. I'm a happy camper!
Other than that it has been a pretty quiet week. I wanted to post sooner but I haven't felt too well lately. Nothing big just migraines and little irritating things. I'm going to try to write up a few posts for this and my other blogs within the next few days though so I can start getting into the swing of things again. I miss blogging and miss reading everyone's blogs as well.
Have a great weekend everyone and take care.
I felt so kinky on Monday, I got felt up by a chic while two guys watched. GO ME!!!!
Okay so what really happened is the breast surgeon examined me at my appointment and I could have given a shit less that two med students watched. LMFAO.
The word on the lump in my right breast is that it does NOT look to be a form of breast cancer and is most likely metastatic medullary cancer. We are going to do another scan in three months and go from there on it. Of course, if it IS metastatic MTC then I am the only person this surgeon has known that has had it spread there. I'm going to have to check with my MTC group and see if anyone else has had it though because the folks on the group would know.
As for the the lymph node in my neck, I will be having surgery to have it removed on April 15th. It will be easy compared to my last cancer surgery on my neck so I'm happy.
I'm not going to St Louis at this point because the doctor felt (she's a thyroid & breast surgeon) we would cause more damage than good if we went after the other 12 (?) cancerous lymph nodes in my neck. I already have a ton of scar tissue AND we already know the medullary cancer has spread to my armpits and lungs sooooooooooo no hurry taking out a bunch of little lumps. Same thing goes for the spots in my lungs. It just all stays for now and once they start growing then we'll turn to surgery and maintenance meds.
So all in all a good day. I get to keep what little bitty boobies I got and I finally get this damn thing out of my neck that has been pressing on my carotid artery and causing the mini strokes. I'm a happy camper!
Other than that it has been a pretty quiet week. I wanted to post sooner but I haven't felt too well lately. Nothing big just migraines and little irritating things. I'm going to try to write up a few posts for this and my other blogs within the next few days though so I can start getting into the swing of things again. I miss blogging and miss reading everyone's blogs as well.
Have a great weekend everyone and take care.
Tuesday, March 25, 2008
As always, things here are never boring.
Since my last post Monkeyboy got a bug bite on his bottom lip and we have had a wonderful run in with MRSA, the results came back on Big B's 24hr urine showing that adrenal tumors are most likely beginning, and just all kinds of fun. haha
This was our first time dealing with MRSA so it was a little scary especially since no one bothered to tell us (doctor and then urgent care who had taken a culture) what the infection was until it was pretty much too late for the rest of us. Considering that I don't like the idea of ANY of my kids being sick plus I have a weakened immune system.... well that didn't sit too well with me AT ALL. Saying I was beyond pissed would be an understatement. Thankfully though no one else got the infection and Monkeyboy is doing much much better. To be honest, I didn't know a whole lot about staph infections before this month but boy do I now! Nasty stuff and I recommend everyone to read up on it because you just never know when it could show up.
As for Big B, we had elevated levels in his test results and had to see another endocrinologist (because his ped endo felt he was old enough to go to an adult endo) to decide what to do next. I felt really comfortable with this endo considering that he is MY endo's husband! After going over the results and talking to Mr Dr Endo the plan is to test Big B every three months to see how the results flucuate/rise. If it looks like things are going slowly then we will wait it out for a bit (because pheochromocytomas usually grow fairly slowly) but if it looks like tumors are forming quickly then the search for a topnotch adrenal surgeon will begin. There is no way in hell I'm letting any of my kids end up all messed up like I am. I love them too much.
So please keep my kiddo in your thoughts for awhile. I'd really rather things not come to him needing surgery. I think they've dealt with enough of this MEN2a bullshit already.
I am happy to report that I did not almost die this month. Amazing I know!! *smiling* Actually, now that I know what to do I see adrenal crisis being a very rare thing for me and I'm very happy about that. Now all I just need to make it through the upcoming appointment with the thyroid/breast surgeon on March 31st and things will be all good. To be honest, I'm scared about that one but really really hoping the lump in my breast is nothing and we can go back to life as usual.
Since my last post Monkeyboy got a bug bite on his bottom lip and we have had a wonderful run in with MRSA, the results came back on Big B's 24hr urine showing that adrenal tumors are most likely beginning, and just all kinds of fun. haha
This was our first time dealing with MRSA so it was a little scary especially since no one bothered to tell us (doctor and then urgent care who had taken a culture) what the infection was until it was pretty much too late for the rest of us. Considering that I don't like the idea of ANY of my kids being sick plus I have a weakened immune system.... well that didn't sit too well with me AT ALL. Saying I was beyond pissed would be an understatement. Thankfully though no one else got the infection and Monkeyboy is doing much much better. To be honest, I didn't know a whole lot about staph infections before this month but boy do I now! Nasty stuff and I recommend everyone to read up on it because you just never know when it could show up.
As for Big B, we had elevated levels in his test results and had to see another endocrinologist (because his ped endo felt he was old enough to go to an adult endo) to decide what to do next. I felt really comfortable with this endo considering that he is MY endo's husband! After going over the results and talking to Mr Dr Endo the plan is to test Big B every three months to see how the results flucuate/rise. If it looks like things are going slowly then we will wait it out for a bit (because pheochromocytomas usually grow fairly slowly) but if it looks like tumors are forming quickly then the search for a topnotch adrenal surgeon will begin. There is no way in hell I'm letting any of my kids end up all messed up like I am. I love them too much.
So please keep my kiddo in your thoughts for awhile. I'd really rather things not come to him needing surgery. I think they've dealt with enough of this MEN2a bullshit already.
I am happy to report that I did not almost die this month. Amazing I know!! *smiling* Actually, now that I know what to do I see adrenal crisis being a very rare thing for me and I'm very happy about that. Now all I just need to make it through the upcoming appointment with the thyroid/breast surgeon on March 31st and things will be all good. To be honest, I'm scared about that one but really really hoping the lump in my breast is nothing and we can go back to life as usual.
Wednesday, March 05, 2008
Life And Almost Death
As I said in my last post before I "disappeared", I felt like hell so on February 6th I went to see my PCP and find out what was going on with me. On the way to his office I started getting extremely horrid nausea and feeling like I was going to black out. Once we got to the office I informed them of what was happening and they still had me sit in the waiting room for 45 minutes. Finally I asked the nurse if I could please go to a room before I passed out.
Once in the room my doctor came in fairly quickly. He diagnosed me with a sinus infection and bronchitis. When I asked him about the feeling like I'm going to blackout and nausea he just said it was probably from the sinus infection. Ummmm okay. Personally I was worried about it being the start of an adrenal crisis. Anyway- got meds for the infection and bronchitis, went home, and proceeded to go downhill from there.
By February 9th I was sicker than I have honestly been in my entire life. It was the worst nausea I could ever imagine and it was a real fight to stay conscious. Finally I told Hubby that I needed to go to the ER because I believed I was in adrenal crisis. Before leaving, I decided to use my injection kit in hopes that it would help ease the nausea some (this part is important later).
I honestly thought the whole thing was no big deal but when I told my endocrinologist about it on February 22nd (that was the first appointment I could get as she's been out of state for a family emergency), she informed me that had I not given myself an injection before leaving I would have died on the way to the ER. That scared the hell out of me!! She then proceeded to explain adrenal crisis in depth to me which is something that wasn't done before and told me exactly what to do when I get sick again. I also found out that doubling my steroid dose when sick was pretty much worthless because I take 5mg a day of Cortef so the most I took while sick was 20mg. Ummmm, I guess when you get sick the LEAST you should take is 40mg in the morning and 20mg in the afternoon. Whoops.
My endocrinologist is sending me to a thyroid/breast surgeon on March 31st because she says that even though the biopsy results on the lymph node in my neck came back benign, it wouldn't have shown up on the Octreotide scan if there weren't cancerous cells in there so she wants it taken out. If this surgeon can do it then we'll have it done here in New Mexico but if she isn't comfortable then I'll be sent to St. Louis for surgery.
My endo wanted me to see this surgeon also because she is a thyroid AND breast surgeon which leads to my second bit of news. My doctor is worried about the lump in my right breast and her opinion is that it needs to be removed and then biopsied because as far as she's concerned it's gotta go whether its benign or malignant. Of course, we will go by whatever the surgeon feels is best in this case and personally I don't care what they do with it as long as I hear the word "benign".
I seriously think learning I have breast cancer would be the breaking point for me. I can take alot of shit but being told yet again that I have another form of cancer would be too much.
I figured that title covered both things I am posting about today. LOL. First, the story about what a shitty month February was...
As I said in my last post before I "disappeared", I felt like hell so on February 6th I went to see my PCP and find out what was going on with me. On the way to his office I started getting extremely horrid nausea and feeling like I was going to black out. Once we got to the office I informed them of what was happening and they still had me sit in the waiting room for 45 minutes. Finally I asked the nurse if I could please go to a room before I passed out.
Once in the room my doctor came in fairly quickly. He diagnosed me with a sinus infection and bronchitis. When I asked him about the feeling like I'm going to blackout and nausea he just said it was probably from the sinus infection. Ummmm okay. Personally I was worried about it being the start of an adrenal crisis. Anyway- got meds for the infection and bronchitis, went home, and proceeded to go downhill from there.
By February 9th I was sicker than I have honestly been in my entire life. It was the worst nausea I could ever imagine and it was a real fight to stay conscious. Finally I told Hubby that I needed to go to the ER because I believed I was in adrenal crisis. Before leaving, I decided to use my injection kit in hopes that it would help ease the nausea some (this part is important later).
So we went to the ER, spent over two hours in the waiting room even though they were told it's a medical emergency, and once we went back were there for another six hours. *sigh* I ended up taking through an IV- two different nausea meds, two doses of steroids, and three bags of IV fluids because I was so horribly dehydrated. Once that was in me I felt MUCH better and continued to get better once we were home.
I honestly thought the whole thing was no big deal but when I told my endocrinologist about it on February 22nd (that was the first appointment I could get as she's been out of state for a family emergency), she informed me that had I not given myself an injection before leaving I would have died on the way to the ER. That scared the hell out of me!! She then proceeded to explain adrenal crisis in depth to me which is something that wasn't done before and told me exactly what to do when I get sick again. I also found out that doubling my steroid dose when sick was pretty much worthless because I take 5mg a day of Cortef so the most I took while sick was 20mg. Ummmm, I guess when you get sick the LEAST you should take is 40mg in the morning and 20mg in the afternoon. Whoops.
My endocrinologist is sending me to a thyroid/breast surgeon on March 31st because she says that even though the biopsy results on the lymph node in my neck came back benign, it wouldn't have shown up on the Octreotide scan if there weren't cancerous cells in there so she wants it taken out. If this surgeon can do it then we'll have it done here in New Mexico but if she isn't comfortable then I'll be sent to St. Louis for surgery.
My endo wanted me to see this surgeon also because she is a thyroid AND breast surgeon which leads to my second bit of news. My doctor is worried about the lump in my right breast and her opinion is that it needs to be removed and then biopsied because as far as she's concerned it's gotta go whether its benign or malignant. Of course, we will go by whatever the surgeon feels is best in this case and personally I don't care what they do with it as long as I hear the word "benign".
I seriously think learning I have breast cancer would be the breaking point for me. I can take alot of shit but being told yet again that I have another form of cancer would be too much.
For now though I'm just enjoying life whenever I can. I let Big B get his ear pierced for the first time two weeks ago and last week I let Sis get two new holes (three total) in her right ear. I think at this point Hubby is worried that I'm going to bring the 5 year old home with a piercing. Haha
Monday, February 04, 2008
Being Sick Sucks!!!
Considering how lame that post title is that should tell you just how sick I am. LOL. What started out as a simple cold over two weeks ago has now turned into a barking cough that Hubby swears is pertussis, a sinus infection over my right eye, a throat that feels like I've spent the last week eating shards of glass, and a feeling in my chest like I've been punched repeatedly by the Incredible Hulk. Sounds lovely doesn't it? Dammit.
Big B and Hubby caught the cold and then got over it, Sis was the one lucky family member who didn't get it at all, and MonkeyBoy still has it holding on to him a little bit as well. I feel worse for him than I do for myself because he's such an active little bug that being sick is driving him bananas!
I'm afraid this post won't be very long or very exciting either and I apologize. I just wanted to make sure I posted something so that the few people who are left reading this blog will actually still read. *laughing* We all know how flaky I can be when it comes to posting but this time you can at least know that it's only because I'm a sickly gal. *wink*
So I'm afraid that is it for tonight and I will try to post something exciting tomorrow if the Hubby and heathens allow me online. I keep getting yelled at to go back to bed and I'm not a stay in bed all day kinda gal so I'm about to go postal on all of them.
In good news, my adorable friend Katie will be here in one week from England! YAY!! She will be here for a little over a month and I can't wait to spend time with her. Most importantly though I hope that the treatment she receives here in the states will ease her pain and give her the life she is use to back.
Considering how lame that post title is that should tell you just how sick I am. LOL. What started out as a simple cold over two weeks ago has now turned into a barking cough that Hubby swears is pertussis, a sinus infection over my right eye, a throat that feels like I've spent the last week eating shards of glass, and a feeling in my chest like I've been punched repeatedly by the Incredible Hulk. Sounds lovely doesn't it? Dammit.
Big B and Hubby caught the cold and then got over it, Sis was the one lucky family member who didn't get it at all, and MonkeyBoy still has it holding on to him a little bit as well. I feel worse for him than I do for myself because he's such an active little bug that being sick is driving him bananas!
I'm afraid this post won't be very long or very exciting either and I apologize. I just wanted to make sure I posted something so that the few people who are left reading this blog will actually still read. *laughing* We all know how flaky I can be when it comes to posting but this time you can at least know that it's only because I'm a sickly gal. *wink*
So I'm afraid that is it for tonight and I will try to post something exciting tomorrow if the Hubby and heathens allow me online. I keep getting yelled at to go back to bed and I'm not a stay in bed all day kinda gal so I'm about to go postal on all of them.
In good news, my adorable friend Katie will be here in one week from England! YAY!! She will be here for a little over a month and I can't wait to spend time with her. Most importantly though I hope that the treatment she receives here in the states will ease her pain and give her the life she is use to back.
Saturday, December 29, 2007
2007 Is Ending With A Bang!
Good news: Results for the heart- They feel that it is nothing more than a heart murmur at worst but I will still have a few more tests to make sure. So heart is okay.
Lump in pectoral wall- They feel that it is probably just an infected lymph node but not sure if it is a bacterial infection or the medullary cancer. Either way it's one lymph node in that spot and not worth worrying about at this point.
Okay news: I have a total of eight cancer infested lymph nodes in my neck. There are three on the left side under my jaw, one on the right side under my jaw, three on the right side of my neck, and then the one on my left side that we already knew about. The plan at this point is to remove the one on the left side no matter what and then if biopsies confirm medullary cancer in that one I will be sent to either Dr. Jeff Moley in St Louis or to MD Anderson in Houston to have them pick through my neck and remove every single lymph node etc that they can find. Dr Moley is highly recommended and will not miss anything. He is my best chance for keeping it out of my neck at least for awhile.
Now for the bad news: We now know why I've had this cough for so long. They found six nodules in my lungs at basically three in each lung. They are all around the size of pencil erasers right now. They also found cancer infested lymph nodes in both armpits and one in my right breast (not behind it like the other thing but in). What does this mean? Well it means that the medullary cancer has definately spread past my neck and isn't curable but that isn't as horrible as it sounds. I already knew all that so its okay.
We can't do anything about the lungs right now because the nodules at the size they are now aren't worth going in after. They might take years before they are actually big enough to bother operating on and even then they have trials going on right now that are showing alot of promise in maintaining and shrinking medullary tumors. So that means that the cough is here to stay.
I have been exceedingly tired and had been sleeping almost ten hours a night which is something I haven't done since I was little. When I went to my Family Doctor and told him he said it must be depression. To be honest, I was extremely pissed off! I knew it wasn't depression and I was feeling just fine! After having bloodwork done we now know that my thyroid levels (TSH) were at 19 which is definitely off. That explains the extreme tiredness and is easily fixed by upping my Synthroid.
No clue still why I can't eat without getting sick but I found something that I'm going to ask my PCP about. It might just be a simple matter of I got food poisoning once, the bacteria stayed, and now I have chronic gairdisis is all. So if that's it then I will be eating again soon.
So that is the update. I have an appointment with an ENT doctor on January 8th My endo would have liked it to be sooner but that was the best they could do which I understand. The ENT doc will check my neck, maybe do another scan, and then decide how we go about removing the left lymph node that is pressing on my carotid artery. That should take care of a few problems with it gone. Hopefully one of them is the mini-strokes. I'd like that alot!
I will have whatever other bloodwork and scans need done within the next two weeks and probably surgery by the middle of January at latest. Then when we get the biopsy back its results will decide if I'm taking a little vacation or not. If not then we just wait for the cancer to get bigger in my neck and then do surgery. I know it sounds stupid but since we can't do radiation or chemo and we already know the cancer has spread, it really doesn't make sense to cut me open constantly for the little stuff.
So don't worry. I throw up alot, I'm getting over being so tired, I cough alot, and I've got a bitch of a cavity but Christmas was nice this year and I enjoyed it. I got the one thing I wanted most- not one single argument the whole day! It was awesome! I'm content and I'm enjoying my family.
I know it has been awhile since I've posted to any of my blogs and I'm sorry. I know it lost me alot of readers but that just can't be helped right now. Before Christmas I received the results of my recent CT scans and ultrasound. As I said before, the purpose of the scans was because an Octreotide scan I had showed uptake in my neck along with questionable spots in my heart and right pectoral wall. We wanted to be safe rather than sorry so I had the other scans on December 19th. Well the results were not what we were expecting to say the least.
Good news: Results for the heart- They feel that it is nothing more than a heart murmur at worst but I will still have a few more tests to make sure. So heart is okay.
Lump in pectoral wall- They feel that it is probably just an infected lymph node but not sure if it is a bacterial infection or the medullary cancer. Either way it's one lymph node in that spot and not worth worrying about at this point.
Okay news: I have a total of eight cancer infested lymph nodes in my neck. There are three on the left side under my jaw, one on the right side under my jaw, three on the right side of my neck, and then the one on my left side that we already knew about. The plan at this point is to remove the one on the left side no matter what and then if biopsies confirm medullary cancer in that one I will be sent to either Dr. Jeff Moley in St Louis or to MD Anderson in Houston to have them pick through my neck and remove every single lymph node etc that they can find. Dr Moley is highly recommended and will not miss anything. He is my best chance for keeping it out of my neck at least for awhile.
Now for the bad news: We now know why I've had this cough for so long. They found six nodules in my lungs at basically three in each lung. They are all around the size of pencil erasers right now. They also found cancer infested lymph nodes in both armpits and one in my right breast (not behind it like the other thing but in). What does this mean? Well it means that the medullary cancer has definately spread past my neck and isn't curable but that isn't as horrible as it sounds. I already knew all that so its okay.
We can't do anything about the lungs right now because the nodules at the size they are now aren't worth going in after. They might take years before they are actually big enough to bother operating on and even then they have trials going on right now that are showing alot of promise in maintaining and shrinking medullary tumors. So that means that the cough is here to stay.
I have been exceedingly tired and had been sleeping almost ten hours a night which is something I haven't done since I was little. When I went to my Family Doctor and told him he said it must be depression. To be honest, I was extremely pissed off! I knew it wasn't depression and I was feeling just fine! After having bloodwork done we now know that my thyroid levels (TSH) were at 19 which is definitely off. That explains the extreme tiredness and is easily fixed by upping my Synthroid.
No clue still why I can't eat without getting sick but I found something that I'm going to ask my PCP about. It might just be a simple matter of I got food poisoning once, the bacteria stayed, and now I have chronic gairdisis is all. So if that's it then I will be eating again soon.
So that is the update. I have an appointment with an ENT doctor on January 8th My endo would have liked it to be sooner but that was the best they could do which I understand. The ENT doc will check my neck, maybe do another scan, and then decide how we go about removing the left lymph node that is pressing on my carotid artery. That should take care of a few problems with it gone. Hopefully one of them is the mini-strokes. I'd like that alot!
I will have whatever other bloodwork and scans need done within the next two weeks and probably surgery by the middle of January at latest. Then when we get the biopsy back its results will decide if I'm taking a little vacation or not. If not then we just wait for the cancer to get bigger in my neck and then do surgery. I know it sounds stupid but since we can't do radiation or chemo and we already know the cancer has spread, it really doesn't make sense to cut me open constantly for the little stuff.
So don't worry. I throw up alot, I'm getting over being so tired, I cough alot, and I've got a bitch of a cavity but Christmas was nice this year and I enjoyed it. I got the one thing I wanted most- not one single argument the whole day! It was awesome! I'm content and I'm enjoying my family.
Sunday, November 25, 2007
No Hump No Hump Just Ugly Little Lumps
They are soooooooo not lovely either!! Well I got my Octreotide Scans results back today and it wasn't what I was expecting.
The cancer is definately back on the left side of my neck and coming back in the right side also known as there was definate uptake on the left and mild on the right. I expected that though and knew someday it would come back. I really didn't expect it this soon though so that kinda sucks. *sigh*
The part I didn't expect is that there is a questionable spot on the scan behind my right breast and also two more in my heart. Yeah, a little scary. I figured I would go in and hear that NOTHING lit up and just go on with what to do with this lymph node that is pushing on my artery. So much for thinking right? It's not time to worry yet because the spots in my chest and heart very well might be nothing. That's what getting more scans is going to find out.
So I have to have three scans done- a CT Scan of my neck and chest (with and without contrast), an Ultrasound of my chest, and an Ultrasound guided biopsy of that lymph node in my neck. The first two will tell us if there is any reason to worry about the heart or chest and the last one is just so a surgeon will agree to operate on me. My endocrinologist said the scans should be scheduled pretty quickly so I will keep you updated.
I've also been quite sick this month for some reason. The fibromyalgia is with me everyday now, I'm getting horrid migraines, nausea and/or vomiting everytime I eat, no energy, and just an all over feeling like I'm burning with fever yet on a thermometer I never go above 100 degrees. No blue what is going on at this point. That mystery cough is still with me too. I've had it for over a year now but nobody seems to think it's important.
So much for thinking I got to relax and kick back this month. Hey, if I can't laugh at it then it wins and I'm a sore loser. ;)
They are soooooooo not lovely either!! Well I got my Octreotide Scans results back today and it wasn't what I was expecting.
The cancer is definately back on the left side of my neck and coming back in the right side also known as there was definate uptake on the left and mild on the right. I expected that though and knew someday it would come back. I really didn't expect it this soon though so that kinda sucks. *sigh*
The part I didn't expect is that there is a questionable spot on the scan behind my right breast and also two more in my heart. Yeah, a little scary. I figured I would go in and hear that NOTHING lit up and just go on with what to do with this lymph node that is pushing on my artery. So much for thinking right? It's not time to worry yet because the spots in my chest and heart very well might be nothing. That's what getting more scans is going to find out.
So I have to have three scans done- a CT Scan of my neck and chest (with and without contrast), an Ultrasound of my chest, and an Ultrasound guided biopsy of that lymph node in my neck. The first two will tell us if there is any reason to worry about the heart or chest and the last one is just so a surgeon will agree to operate on me. My endocrinologist said the scans should be scheduled pretty quickly so I will keep you updated.
I've also been quite sick this month for some reason. The fibromyalgia is with me everyday now, I'm getting horrid migraines, nausea and/or vomiting everytime I eat, no energy, and just an all over feeling like I'm burning with fever yet on a thermometer I never go above 100 degrees. No blue what is going on at this point. That mystery cough is still with me too. I've had it for over a year now but nobody seems to think it's important.
So much for thinking I got to relax and kick back this month. Hey, if I can't laugh at it then it wins and I'm a sore loser. ;)
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